Of the 2.8 million Utah residents, only 2,245 patients have an EGID (0.08%). Of those, only 472 (0.02%) may require formula long term (more than five years).
About 70% of those with an EGID are under the age of 12 years and almost 50% will use formula for less than a year. This is considered short-term for insurance companies but financial ruin for a family with no coverage (especially if more than one child is affected).
More than a third of those on elemental formula are solely on formula…they cannot eat anything by mouth at all. Another third can only have less than 10 foods. No one can receive adequate nutrition off of ten foods. Probably 98% of their nutrition comes from elemental formula.
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